We are absolutely thrilled and honored that they picked up her story to share! One giant step closer to putting SCN2a on the map!! She may not be able to speak but her message is of Joy is louder than any words could ever be!
Please keep her in your prayers as we get closer to the marathon. We are doing everything in our power to keep her healthy and out of the hospital. She has been having a very rough time with seizures lately, they are completely out of control and we have been close to having to bring her in. With increased seizures comes a host of other issues that can get complicated for Charlotte. Prayers are appreciated more than you know!
with love and joy,
**note the story links to the FamilieSCN2a.org page, and unfortunately that page is temporarily down, but it will be back up and running hopefully early next week! Make sure to check back if you are looking for more information on SCN2a!